Overview
Monday to Friday 9.00 am - 4.30pm
Rett UK was founded in 1985, by Yvonne Milne, whose daughter Clare, was one of the first girls in the UK to receive a diagnosis. Yvonne went on to become our first Honorary Chair when an Executive Committee was formed and charitable status obtained. Yvonne has since been awarded an MBE for her work and is President of Rett UK.
Rett syndrome is a complex neurological disorder. Genetic in origin, it affects one in 12,000 females and a few males. Although signs of Rett syndrome may not be initially obvious, it is present at birth and becomes more evident during the second year. People with Rett syndrome are profoundly and multiply disabled with high support needs throughout their life and this means that they will be highly dependent on others their entire life.
Rett UK is the only UK charity providing professional support to individuals and their families with Rett syndrome.
Rett UK provides:
Telephone & Electronic Support Services
Quarterly magazine – Rett News
Rett Clinics – across the country
Support and information
Contact network – linking families
Regional support groups
Regional Events
Family Weekends
Contact
Costs
| Description | Cost type | Unit price | Cost unit |
|---|---|---|---|
| Free | Free |