Overview
The PCD Family Support Group was formed in 1991 to:-
- Provide support to patients and their carers who have, or are suspected of having, PCD
- Bring PCD to the attention of medics who may come across PCD and continue to provide an up to date information service for them and the general public
- To promote research to aid diagnosis and treatment of patients with PCD
- Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care
- Fundraise to support the above activities
We are a registered charity which is run by a committee of volunteer trustees. We are also supported by the PCD Medical Board which is a group of clinicians with an interest in PCD. This group is chaired on a rotational basis by Professor Andy Bush, Professor Chris O'Callagham, Dr. Claire Hogg and Dr. Jane Lucas.