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Myotonic Dystrophy Support Group UK

Overview

A national self help organisation offering information and support as well as a network linking families in their local area.
Our mission is to ‘offer the hand of friendship to those affected by Myotonic Dystrophy', so our helpline and our regional contacts are important elements in our work.
As well as providing news through our Website and our Newsletter. We also provide a number of services through our Nottingham office.
Conferences
Awareness Programme
Newsletters
Contact Families
Regional Meetings
Telephone Listening
We provide emotional support and advice through our 24hr Helpline 0808 169 1960

Contact

24hr Helpline0808 169 1960
Office, for general information, Tues, Wed and Thur, 9am 1pm0115 987 5869
Myotonic Dystrophy Support Group Websitehttp://www.myotonicdystrophysupportgroup.org

Address

19-21 Main Road
Gedling
Nottingham
NG4 3HQ
Get directions

Last updated: 30 March 2026