Overview
Tuesday - Thursday 9:00am - 1:00pm
Myotonic Dystrophy Support Group is a registered charity, founded by Margaret Bowler in 1989, run by volunteers and dedicated to offering the hand of friendship and support to all those affected by Myotonic Dystrophy.
We have a central helpline and a network of regional contacts throughout the United Kingdom, as well as extensive links abroad. We are supported by professional specialist advisers, including in the fields of genetics, neurology, anaesthetics, research and rehabilitation.
Contact
Address
Inclusion
Supporting
- Learning difficulties
- Physical disability
Local Offer
The MDSG website offers a range of pratical help and information including:
- Alert Card
- Care Card
- MDSG Shop
- Conferences
- Newsletter
- Contact Families and Useful Website Links
Please click here to visit their website (opens in new tab) for more help and information.