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Myotonic Dystrophy Support Group (MDSG)

Overview

Tuesday - Thursday 9:00am - 1:00pm

Myotonic Dystrophy Support Group is a registered charity, founded by Margaret Bowler in 1989, run by volunteers and dedicated to offering the hand of friendship and support to all those affected by Myotonic Dystrophy.

We have a central helpline and a network of regional contacts throughout the United Kingdom, as well as extensive links abroad. We are supported by professional specialist advisers, including in the fields of genetics, neurology, anaesthetics, research and rehabilitation.

Contact

Address

Myotonic Dystrophy Support Group, 19-21 Main Road
Gedling
Nottingham
Nottinghamshire
NG4 3HQ
Get directions

Inclusion

Supporting

  • Learning difficulties
  • Physical disability

Local Offer

The MDSG website offers a range of pratical help and information including:

- Alert Card

- Care Card

- MDSG Shop

- Conferences

- Newsletter

- Contact Families and Useful Website Links

Please click here to visit their website (opens in new tab) for more help and information.

Last updated: 30 March 2026