Overview
The Fragile X Society provides support and information to Fragile X families from those who share and understand their concerns and needs. They also raise awareness and understanding of the syndrome and so improve the care of all people affected by Fragile X Syndrome (FXS).
Fragile X Syndrome (also known as Martin–Bell Syndrome) is a genetic syndrome that is the most widespread single-gene cause of autism and inherited cause of intellectual disability, especially among boys.
It results in a spectrum of intellectual disabilities ranging from mild to severe, as well as physical characteristics, such as an elongated face.
Contact
Inclusion
Supporting
- Autism
- Social, emotional and mental health needs
- Learning difficulties
Local Offer
The Fragile X Society website contains information, advice and support for people with Fragile X Syndrome and their families and carers.
Membership of the Society is FREE to:
- Fragile X families
- carriers of Fragile X
- people who are affected by Fragile X
- full time carers of children or adults with Fragile X
The Society has specialist staff available to offer support to families and children and has a dedicated section of the website just for children, called Kids Zone. This part of the website also contains information for the brothers and sisters of children with Fragile X.
Click this link to visit the 'Kids Zone' (opens in new tab) section of their website.