This page contains links to useful organisations who can refer parents/carers and young people to a wide range of support in the community from information about local services, providers up to practical advice on how to apply for benefits.
In addition, this page also contains a description of central government benefits available, designed for the parents/carers of children/young people with disabilities to help with extra costs incurred as a result of their disabilities, with links to the relevant websites
Nottinghamshire Parent Carer Forum (Notts PCF) is an independent parent carer led organisation run by volunteers who represent the views, experiences and ideas of families that live or access services in Nottinghamshire and have a child or young person with an additional need and/or a disability.
Notts PCF is an important source of information regarding the SEND offer in Nottinghamshire for parents/carers. Find out more on the Nottinghamshire Parent Carer Forum (Notts PCF website).
The IRIS Project is a one-stop shop offering information, advice and support to parents and carers of children and young people with disabilities based in Nottingham and Nottinghamshire.
The IRIS Project has three elements:
- The Ask IRIS website,
- A quarterly magazine,
- A monthly e-newsletter
The IRIS Project supports the co-ordination of a database of disabled children across Nottinghamshire and Nottingham. The aim of the project is to empower families of children with disabilities to have a voice in order to change and shape future services in the County and City.
The Magazine contains informative articles, upcoming events, details of specialist disability activity clubs, support groups, and family activities. The magazine is available on line and also as a printed copy which can be sent to your home. Find out more on the Ask Us Nottinghamshire website.
Disability Living Allowance (DLA) for children may help with the extra costs of looking after a child who:
- is under 16
- has difficulties walking or needs much more looking after than a child of the same age who doesn’t have a disability
They will need to meet all the eligibility requirements available through the Gov.uk website
The DLA rate is between £22.65 and £145.35 a week and depends on the level of help the child needs.
Further information regarding eligibility, how to apply and rates of support can be found on the Government website.
In addition to the guidance provided through the Government website, there are local and national support groups who can help with applications for benefits.
Contact for families with disabled children
Support families with the best possible guidance and information whatever their child’s disability.
For more information about Disability Living Allowance (DLA) click here
You may be able to get help with some of the extra costs caused by long term ill-health or disability, PIP is available for people aged 16 to 64, consequently this benefit will be of interest to the parents/carers of young people and young adults .
The PIP rate is between £22.65 and £145.35 a week and depends on how conditions affect the individual rather than the condition itself.
Individuals are assessed by a health professional to determine the support level with this being regularly reviewed to ensure that individuals receive the right level of support.
Further information regarding eligibility, how to apply, rates, and claim reviews can be found on the Government website.
In addition to the guidance provided through Government website, there are local and national support groups who can help with applications for benefits.
The Council for Disabled Children is the umbrella body for the disabled children’s sector bringing together professionals, practitioners and policy makers.
The Council for Disabled Children has over 250 member organisations covering the width and breadth of the country and representing the full diversity of the disability sector.
The Council for Disabled Children is a useful source of help and resources for Parents/Carers. Find out more on the Council for Disabled Children website.
Ask Us Nottinghamshire offer the following support services for parents/carers of children and young people with SEND:
- Telephone helpline.
- Face-to-face support.
- In-depth casework support for parents including attendance at education-related meetings.
- Support to request EHC Needs Assessment and with the EHCP process and appeals.
- Advice and support relating to exclusions of children/young people with SEND.
Ask Us Nottinghamshire can be accessed via email: firstname.lastname@example.org or tel: 0800 1217772
TuVida provides timely, personalised information and support via the Nottinghamshire Carers Hub for residents of both the County and the City, where the Carers Hub can offer:
- Information, advice and guidance
- Signposting to other organisations and services
- Access to Carers groups and drop-ins
- Peer Support
- Access to Carers Grants
- Free training and caring support
The list above is not exhaustive, but gives an indication of the type of support which can be provided. Find out more on the TuVida website.
Nottinghamshire County Council provide information about the type of benefits available to residents to include:
- Benefit title
- Description of the benefit offered
- Description of who can apply for the benefit offered
More detailed information is also provided for some of the most popular benefits including Disability Living Allowance (DLA) and Personal Independence Payments (PIP). Find out more on the Nottinghamshire County Council website.
Citizens Advice also provide advice on rights, including benefits and financial support. Find out more on the Citizens Advice website.