Fanconi Hope (UK and Ireland)
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological and head & neck cancers, together with other complications both in childhood and in later life.
Whilst the bone marrow failure element can be corrected through bone marrow transplantation from a well-matched donor, there is still no cure for the cancer-predisposing condition .
Fanconi Hope is a national charitable trust set up in 2008 by parents of FA-affected children and clinicians with an interest in FA to provide guidance and information for patients, families, clinicians and researchers.
For anybody affected by Fanconi anaemia in the UK and Ireland. Telephone helpline offers support and advice to families, patients, doctors or anyone else who comes into contact with Fanconi anaemia (an inherited rare genetic disorder which typically results in severe bone marrow failure). Information available on optimum diet and nutrition, vitamins and minerals which help FA sufferers. Latest research information available - UK and USA mailing list. Handbook available on request. Family network contacts, for support.
Last Updated
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Contact Details
- Telephone
- 0300 330 1410 0300 330 1410
- Website
- www.fanconi.org.uk
- Scan to visit this website
- Notes
Online contact form: http://www.fanconi.org.uk/contact/
Where to go
- Address
-
PO Box 905
Southsea
- Postcode
- PO1 9JG
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