Unique - understanding chromosome disorders

Understanding Rare Chromosome and Gene Disorders

Having a child with a rare chromosome disorder can be a huge shock and can stir up a whole range of emotions and a great desire to learn more about your child's disorder. Most of us who help run the group have been through these experiences and know how you are feeling. Most parents' first reaction, quite understandably, is to "find" another, older child with the same disorder as their child. While this might be possible for some, it still does not mean that the two children will develop in the same way. However, just talking to other parents with a child with a rare chromosome disorder can be a great relief and can help to alleviate feelings of isolation and "why me?"

You are not alone!

Please do become a member and use Unique's services. For more information about our services please take a look at our How Can We Help section and then explore the website. If you have a question, we will do our very best to answer it or point you in the direction of someone who can.

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Contact Details

Telephone
01883 723356 01883 723356 Fundraising & Admin: 01883 723306 Fundraising & Admin: 01883 723306
E-mail
info@rarechromo.org
Website
Unique
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Notes

Get in touch online form: Get in Touch - Unique (rarechromo.org)

Where to go

Name
Unique The Rare Chromosome Disorder Support Group
Address
The Stables
Station Road West
Oxted
Surrey
Postcode
RH8 9EE
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Time, Costs and Availability

Costs

Details
Membership of Unique is free for families and individuals affected by rare chromosome disorders but donations are very gratefully received to help us continue our work.
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